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Frustrated, could I have Small Fiber Neuropathy?Neuropathy | Last Active: Jun 3, 2021 | Replies (10)
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Peripheral neuropathy is a condition resulting from the deterioration of the peripheral (most distant from the center) nerves. Your symptoms mostly sound like they are related to the more central nerves.
The skin test is usually done on the top of the foot, which are the most distant nerves of all, and is the part usually (not always) affected first. I'm not sure if skin tests of more central areas are even done. You are not describing any symptoms of the feet or hands, where PN usually manifests.
The best thing would be to start fresh with a new neurologist that you like, and let him/her proceed with the workup in the usual order, without too much of you managing the workup with suggestions, etc. Skin testing is usually one of the last tests done.
@millis Your SFN could actually be from being hypo when was the last time you saw and endocrinologist and had a thyroid panel NOT just TSH?
Im thyroid-less and I have been seeing a neurologist and was also recently told I have small fiber neuropathy (my skin burns) its like having a sunburn without the burn absolutely horrible it effects my entire body but my most troubled areas are the tops of my feet and hands (not diabetic) I obsessed over that and recently started developing a numb feeling in my tongue and my toes. I do regret my thyroidectomy every day as my health has disintegrated over the past 4 years and can’t get real medical help because my thyroid labs are ridiculously low in their levels all of them so according to my Endo im good! Thats why I can’t wear socks, shoes, gloves and wear pants and shirt to bed to keep my skin from touching and rubbing on my sheets when I move … but Im good!! Agh.