Hello, @change23, and all....I'm so saddened that you're symptoms are increasing. Does your doc have you on any meds for the symptoms until you get to the hospital appt? You don't want to muck up the works by covering up help w/diagnoses, but do need help with survival until you see the hospital folks.

When is your hospital appt? Can you share something about the docs you'll be seeing? What kind of specialty? Is this a teaching hospital? It sounds like you are pleased and like the referral....

BTW: I've found when changing direction like you are with the docs/investigators, I personally went to my present docs and hospitals and took cc of records to the new doctors. Most often at no charge. Sometimes a minimal cost, but worth it to know the new folks have records they need. I don't ask them to be sent, usually. Hand deliver. This also allows me to have cc for myself, which is most helpful for my own information and knowledge and to compare to new tests, etc. Just part of staying proactive, I'm in charge of this body and this journey so I want it to be as smooth as possible, get good answers from legit information and I want to stay on top of what tests and docs are finding, thinking, saying. It's working well for me.

Hope some of what we're saying is helping you....you're so wise to get on this group for support as soon as you developed the problems. You can be proud of yourself. You are the exception.
Bless you and may your have some relief and peace. elizabeth