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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
Hope everyone is well. Just thought I'd give a quick update: I recently visited my Dr due to ongoing stomach issues. After a thourough examination no abnormalities were discovered. However, a full health check did reveal high blood pressure which is being monitored. The vitamins are still combating the fatigue and pain which is good. Although, I've been having pretty significant burning in my nostrils and on the surafce of my nose which is rather painful - along with disrupting my breathing. This has also been accompanied with my eyes becoming extremely red and sore. I'd say this last week my face has continued to deteriorate where more volume has been lost on my right side with a change in pigmentation of the skin. It has gotten to the point where I've had to remove all mirrors from my house to maintain some sanity. I'm a shell of who i used to be, I'm desperately trying to fight it but it is getting harder and harder. I can only hope the hospital will have some answers.
Replies to "Hope everyone is well. Just thought I'd give a quick update: I recently visited my Dr..."
@change25 I understand that nothing is going right for you at this time. I sure wish we could help more. Have you thought about asking your doctor to send your medical records to Mayo Clinic and calling for a consult?
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Hello, @change23, and all....I'm so saddened that you're symptoms are increasing. Does your doc have you on any meds for the symptoms until you get to the hospital appt? You don't want to muck up the works by covering up help w/diagnoses, but do need help with survival until you see the hospital folks.
When is your hospital appt? Can you share something about the docs you'll be seeing? What kind of specialty? Is this a teaching hospital? It sounds like you are pleased and like the referral....
BTW: I've found when changing direction like you are with the docs/investigators, I personally went to my present docs and hospitals and took cc of records to the new doctors. Most often at no charge. Sometimes a minimal cost, but worth it to know the new folks have records they need. I don't ask them to be sent, usually. Hand deliver. This also allows me to have cc for myself, which is most helpful for my own information and knowledge and to compare to new tests, etc. Just part of staying proactive, I'm in charge of this body and this journey so I want it to be as smooth as possible, get good answers from legit information and I want to stay on top of what tests and docs are finding, thinking, saying. It's working well for me.
Hope some of what we're saying is helping you....you're so wise to get on this group for support as soon as you developed the problems. You can be proud of yourself. You are the exception.
Bless you and may your have some relief and peace. elizabeth