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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@athenalee

There are a lot of unknowns with the vaccine. I’ve only had neuropathy since November, now believed related to Sjogren’s. A few days after my first shot, my neuropathy increased significantly…numbness, tingling, and pain. It subsided some, but did not go back to the pre-shot level.

I did get the second shot, and again my symptoms increased, and have not subsided. My neurologist said that it was probably an autoimmune reaction (I have 3 autoimmune diseases).

I do not know, and will never know, if my neuropathy would have increased as dramatically or not. For me, the real irony is that I’m an organ transplant person, and the John Hopkins study on transplant people shows that most, after having both shots, have limited, if any, antibody protection. And, in my case most likely none since I’m 62, take Mycophenolate, 8 months out of transplant, and, I had the Pfizer vaccine.

So, I continue to advocate that people get vaccinated. But, as it’s unknown the effects it has on some people, only you can weigh the pros and cons for yourself and circumstances.

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Replies to "There are a lot of unknowns with the vaccine. I’ve only had neuropathy since November, now..."

I’m so sorry this is happening to you! How long has it been now since your 2nd shot?