COVID vaccines and neuropathy

@dhamil & @tcp36c My pain was not worse after the second injection. It is resolving - a lot more slowly than I would like, but it is better.
My decision was based on my extreme desire to get back to life - I am used to living with pain, and would rather deal with that than continued isolation and fear of a severe Covid infection.
Life isn't perfect, but being able to be with friends and family, to get out in the world, and to know if I do get Covid it is likely to be mild, outweighed my fear of worse pain.
Sue

Than you for sharing. Hopefully we will all have continued improvement.

I was wondering,Did the 1st shot cause you new or increased pain? If it did how bad did it get after your first dose? Mine is pretty bad. It will be hard to handle it if it gets worse.

The thought was that I likely had the pinched nerve brewing due to posture (I do 100% computer work, remotely now) and the arm pain from the shot caused everything on my right side--arm, shoulder and neck to tighten up which pulled/pinched on the nerve. He wants to follow up after 6 PT sessions (had my 3rd today) and if the nerve pain is still persisting he may order an EMG.

@dhamil- Hello, it's nice to meet you. Masks are not coming off unless people take them off. This will increase their chances of getting covid or giving it. I think that your win is to be fully vaccinated. Pain levels in people vary and you might find that it's less for the second stab. If you get covid pain it will be the least worrisome of all of your symptoms. With being fully vaccinated you will have a 100% rate of not getting severe illness- no hospitalization, no need to be incubated or have end-organ deaths. Perhaps if your pain increases or doesn't go away you might look for clinics that are set up for post-covid long haulers.

I had Moderna and that second shot's side effects were tough. It lasted a week or so. I was very lucky, not so much for being fully vaccinated but that even if I get covid now it will be less severe and as a lung cancer patient this sounds like a great choice for me.

Best of luck and as variants continue to spread it's best to get vaccinated soon.

@suzanne2- Hello. Did you have Moderna? Arm pain is more prevalent with Moderna, it seems. What happens with the flare ups? Does you arm swell, turn red? Do you get a fever? Have you contacted your doctor about it?

My daughter got this, along with very swollen lymph nodes and swollen bicep, 2 weeks after injection. Her doc treated it with a steroid injection at the site of worst pain, and it subsided pretty quickly. That is what I had to do after flu shot last fall, too - it never flared again until after Pfizer injections.
Sue

My arm is slightly swollen and aches. No fever or redness. It's the pain that gets me and as @sueinmn mentioned I have had sore and swollen lymph nodes. No doctor visit. I think my doc would say it is in my head. He told me that after I reported I got sick from the flu shot. On Monday I get a Lidocaine infusion at the Pain Clinic and I am hoping that will help with my pain. I also may mention it to the nurse when I have that procedure. She always ask about my pain.

There are a lot of unknowns with the vaccine. I’ve only had neuropathy since November, now believed related to Sjogren’s. A few days after my first shot, my neuropathy increased significantly…numbness, tingling, and pain. It subsided some, but did not go back to the pre-shot level.

I did get the second shot, and again my symptoms increased, and have not subsided. My neurologist said that it was probably an autoimmune reaction (I have 3 autoimmune diseases).

I do not know, and will never know, if my neuropathy would have increased as dramatically or not. For me, the real irony is that I’m an organ transplant person, and the John Hopkins study on transplant people shows that most, after having both shots, have limited, if any, antibody protection. And, in my case most likely none since I’m 62, take Mycophenolate, 8 months out of transplant, and, I had the Pfizer vaccine.

So, I continue to advocate that people get vaccinated. But, as it’s unknown the effects it has on some people, only you can weigh the pros and cons for yourself and circumstances.

@vbp85 that is good to know you are on a care path and what you've explained sounds plausible! Since you are half way in, would you please share an update again once you get closer to or when you finish your PT to update members on your progress?