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Looking for answers. No diagnosis yet. What next?

Neuropathy | Last Active: Mar 26, 2022 | Replies (31)
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@parasitemom

Not sure why my native plant picture showed up! Its truly a "prickly" problem! May I try again to show you the extent of her problems? I can't upload the video that shows the wormlike movements, but this is one day when her eye was swollen shut, and the movements, seen easily with the naked eye, were around her face and right eye.

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Replies to "Not sure why my native plant picture showed up! Its truly a "prickly" problem! May I..."
John, Volunteer Mentor | @johnbishop | May 21, 2021

Hello @parasitemom, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I can't imagine how difficult this is for you and your daughter to deal with, especially when 2 doctors agree with you but aren't willing to help. Here's some information I found on Cysticercosis from Mayo Clinic.

Tapeworm infection - Symptoms and causes - Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/tapeworm/symptoms-causes/syc-20378174
Test ID: CYSTS -- Cysticercosis Antibody, IgG, Serum: https://www.mayocliniclabs.com/test-catalog/Clinical+and+Interpretive/65872

Have you thought about getting a second opinion or seeking help at a major teaching hospital or health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The
contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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