← Return to COVID vaccines and neuropathy

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COVID vaccines and neuropathy

Neuropathy | Last Active: Jan 6 9:12am | Replies (2241)

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@sueinmn

@dhamil & @tcp36c My pain was not worse after the second injection. It is resolving - a lot more slowly than I would like, but it is better.
My decision was based on my extreme desire to get back to life - I am used to living with pain, and would rather deal with that than continued isolation and fear of a severe Covid infection.
Life isn't perfect, but being able to be with friends and family, to get out in the world, and to know if I do get Covid it is likely to be mild, outweighed my fear of worse pain.
Sue

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Replies to "@dhamil & @tcp36c My pain was not worse after the second injection. It is resolving -..."

Than you for sharing. Hopefully we will all have continued improvement.

I was wondering,Did the 1st shot cause you new or increased pain? If it did how bad did it get after your first dose? Mine is pretty bad. It will be hard to handle it if it gets worse.

Yes, I totally understand the desire to get back to some normality. I haven't seen my sister since February last year. I've not been to the dentist, opticians or hairdresser either. I doubt whether I'd survive Covid anyway.
The nerve pain has increased more than ever all over my body and head, and I've developed possible Gastroparesis. That on top of Ehlers Danlos Syndrome, POTS, Autonomic Dysfunction, Secondary Adrenal and Thyroid insufficiency, diabetes and NAFLD, MCAS, scoliosis/stenosis is tough for me. I'm pretty much housebound anyway so see very few people. I'm pretty much bed bound these past weeks. I really don't know what to do. I'll speak to my GP on Monday.