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facenu (@FaceNu)

New to epilepsy and need guidance and support

Epilepsy & Seizures | Last Active: Jun 7, 2021 | Replies (33)

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@beccahp

Hi! Zach, my husband, Barry, and I got Covid in January and suffered through 5 weeks of awfulness…but we Survived, when lots of our neighbors did not. 🙁 Zach still suffers with some bone pain in his shoulders and hips AND stomach issues. Barry still has no sense of smell or taste and has stomach issues. I'm mostly just tired and have some foggy-brain issues sometimes from Covid. We Did Survive although we kept a Close eye on each other and our O2 situation!! My sweet sis-in-law sent us an oxometer (?) which REALLY helped!! We were able to tell the doctor over the phone what our O2 level was and Know if we needed to go to the ER. We did not. 🙂
Zach's neurologist sent him to a Pain Specialist last week and he was Very Reluctant… thinking she would just tell him to do 'some BIOfeedback or something! 🙁 ' were his words, but she Actually had looked over his charts AND had some new ideas!! Zach, Dad and I were SOO Happy!! He is trying a 7-day patch (I can't remember the name but IF it helps, I Will let y'all know!) and using Tizanadine (sp?), a muscle relaxer for the pain. The 'Tiz' Really helps him to relax and usually sleep, which is the ONLY time he gets Any relief from the constant pain. This doctor gave him 3 Tiz a day, instead of just 1, so he is feeling a little better. I am Happier because I Actually HAVE Something to give him that will help! There's nothing more frustrating than Not being able to help your child have some pain relief!!
Thanks for checking in with us! That means a Lot!! 🙂

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Replies to "Hi! Zach, my husband, Barry, and I got Covid in January and suffered through 5 weeks..."

Hello @beccahp

I can only imagine how happy you must be that Zach now has some meds that help him. I hope you all doing as you recover from COVID. Are Zach's new meds still working well for him?

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