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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
My husband has been dealing with severe muscle loss and fasticulations for about a year and it has gottten increasingly worse.They thought he had multi-focal motor neuropathy but he did not have the antibodies, or any conduction block on his Emg's. So they seem stumped and now think its a type of als though he doesnt have foot drop, or exaggerated reflex. and other indicators. He is extremely upset and I can'thelp but feel that because they don't have a definitive diagnosis they are pointing to that. Anyone have similar experience or can suggest any other tests or avenues to follow. I really appreciate your help.
Replies to "My husband has been dealing with severe muscle loss and fasticulations for about a year and..."
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Hello @theresadono, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I just read the patient's story that sounds like it might be similar to what your husband is experiencing.
Excerpt from article below – "My diagnosis changed from benign fasciculation syndrome (BFS) to cramp … I do not have amyotrophic lateral sclerosis (ALS) or multiple sclerosis (MS) and …" – Living Each Day to the Fullest – GBS/CIDP Foundation: https://www.gbs-cidp.org/patient-stories/living-each-day-to-the-fullest/
Have you thought about seeking help or a second opinion from a major teaching hospital or health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.