← Return to Your tips on how to live with Lymphocytic Colitis/Collagenous Colitis

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@astaingegerdm

@stellawf - Welcome to Mayo Clinic Connect.
We’re you just diagnosed with collagenous colitis? Any treatments?
I am one in this group that has been diagnosed with collagenous colitis.
I’m in remission now and hope to satay there!
Can you give us more information on your current condition?

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Replies to "@stellawf - Welcome to Mayo Clinic Connect. We’re you just diagnosed with collagenous colitis? Any treatments?..."

Yes to you for responding
In May 2017 I became quite ill w diarrhea and with a number of bad medical decisions I stayed sick until Dec of 18
After a antobiodic I went into remission for 3 years doing nothing w diet or drugs.I do not take drugs and have never done so when it came back in Jan if this year I had to have another colonoscopy but this time I had the dr to examine my tissue microscopically and came back w diagnosis of colitis
After starting colestibul for only 2 weeks and steadily using daily probiotics Metamucil and activia I went to being fine
Dr called and wanted to put me on butesonide and I freaked out when I was doing fine
Went to see him and he intimidated me w persistence of it is going to come back
He wouldn’t answer my questions nor counsel me but just push the drug
So I ordered it but I’m not taking it cause I have not received it
I want a second opinion and sent papers to Mayo but nothing or no one has contacted me
Thks