Yes to you for responding
In May 2017 I became quite ill w diarrhea and with a number of bad medical decisions I stayed sick until Dec of 18
After a antobiodic I went into remission for 3 years doing nothing w diet or drugs.I do not take drugs and have never done so when it came back in Jan if this year I had to have another colonoscopy but this time I had the dr to examine my tissue microscopically and came back w diagnosis of colitis
After starting colestibul for only 2 weeks and steadily using daily probiotics Metamucil and activia I went to being fine
Dr called and wanted to put me on butesonide and I freaked out when I was doing fine
Went to see him and he intimidated me w persistence of it is going to come back
He wouldn’t answer my questions nor counsel me but just push the drug
So I ordered it but I’m not taking it cause I have not received it
I want a second opinion and sent papers to Mayo but nothing or no one has contacted me
Thks

@astaingegerdm I’ve had it for more than 35 years, but was finally diagnosed only about 10 years ago. Part of the reason was research wasn’t started for looking for different types of colitis until the late 1980’s, and a rush wasn’t put on it (mostly women get it). Also, the only way to reach a diagnosis is by biopsy of the colon lining in several places. Anyway, What is important to know is it isn’t going to kill you, though it may feel like it at 3:00 am. Try to identify what the main trigger is for your flare ups. For me it’s usually stress, heat stress at the top of the list. When I discovered that, I went into remission and stayed in remission for years. As I got older, I began to have other, major high stress events in my life so it came out of remission again. Sometimes it flares up for no reason at all. My flare ups usually last about 2 weeks then it goes back into remission, but it will happen again the next year. It could be a change in age. Sadly, I’m out of remission right now and most likely will drop at least 20-30 pounds over the next 2 weeks.