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DiscussionYour tips on how to live with Lymphocytic Colitis/Collagenous Colitis
Digestive Health | Last Active: Dec 23, 2023 | Replies (116)Comment receiving replies
Replies to "@stellawf - Welcome to Mayo Clinic Connect. We’re you just diagnosed with collagenous colitis? Any treatments?..."
Yes to you for responding
In May 2017 I became quite ill w diarrhea and with a number of bad medical decisions I stayed sick until Dec of 18
After a antobiodic I went into remission for 3 years doing nothing w diet or drugs.I do not take drugs and have never done so when it came back in Jan if this year I had to have another colonoscopy but this time I had the dr to examine my tissue microscopically and came back w diagnosis of colitis
After starting colestibul for only 2 weeks and steadily using daily probiotics Metamucil and activia I went to being fine
Dr called and wanted to put me on butesonide and I freaked out when I was doing fine
Went to see him and he intimidated me w persistence of it is going to come back
He wouldn’t answer my questions nor counsel me but just push the drug
So I ordered it but I’m not taking it cause I have not received it
I want a second opinion and sent papers to Mayo but nothing or no one has contacted me
Thks