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Mac question: Arikayce Inhaler Antibiotic

MAC & Bronchiectasis | Last Active: Mar 5, 2022 | Replies (73)

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@janeta

I'm currently taking IV Meropenem, Arikayce, Moxifloxacin (Avelox), Azithromycin. The Clofazamine may be started next month. I had no idea that I had anything wrong with my lungs until 2018... no idea that I had bronchiectasis or MAC (no cough!, but extreme fatigue that my PCP didn't pick up on for the couple years I mentioned it) .... I believe it could have been found many years prior .... and I wish it had. "It is what it is." *** As an additional note, I initially, in 2018 started with Rif, Eth, and Azithro, but 9 months in, had a "metabolic implosion" (MY words). A sudden severe reaction to the meds - sepsis, acidosis, hemolytic anemia, kidney failure, kidney dialysis, blood clots, atrial fib, internal bleed. 3 weeks in the hospital; 2 wks in ICU and on dialysis; 6 months to recover. I think I still have PTSD from that horrible event. Then, no meds for a year .... now re-started on the second-string of meds. *sigh* **

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Replies to "I'm currently taking IV Meropenem, Arikayce, Moxifloxacin (Avelox), Azithromycin. The Clofazamine may be started next month...."

@janeta do you have MAC or MAI thanks Heather

Janeta, it's not uncommon to have PTSD-like feelings after an ICU experience. In fact, there's a name for it - Post intensive care syndrome or PICS. You may be interested in sharing your experiences with PICS in the ICU group here: https://connect.mayoclinic.org/group/intensive-care-icu/