Hello @deb63, Welcome to Mayo Clinic Connect. It sounds like you have been battling this condition for a long time and not been able to find any answers. There is another discussion that sounds a lot like what you are describing with your symptoms.

Chronic Illnesses of Millions of Women Left Untreated: https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

You might also be interested in the following video - What happens when you have a disease doctors can't diagnose TED talk by Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
— https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

Have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic?