← Return to Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?

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@parus

@so1frustrated I was diagnosed with bladder cancer around 2 years ago and was terrified when the PA implied the best thing was to have my bladder removed and blah, blah, blah...I was one freaked out woman when I left his office. After learning more I chose to go with the BCG treatments. So far so good at this time.

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Replies to "@so1frustrated I was diagnosed with bladder cancer around 2 years ago and was terrified when the..."

I know....so hard to decide. i will have to have my kidney, ureter and bladder cuff removed but for now not the bladder. He wants me to take chemo BEFORE surgery to reduce chances of recurrence in the bladder or anywhere, but pretty much decided not. I have been through cancer (breast) and radiation implant/treatments and chemo 37 years ago. Some of the problems with health over the years since (now 66) have resulted from these treatments. The research/data on chemo lately is showing to reduce the odds of recurrence, but for me at what cost? Right now it does not look like it has metastasized anywhere, even the lymph nodes "looked normal" with the CT urogram but he does not know for sure. I have been researching like mad myself, even getting a subscription to research studies on this type of cancer, about pros and cons of preoperation chemo, etc. So I'm thankfully here in this group to see what others have been through and what is/has been working etc. THANK YOU for responding!

@parus- Welcome back my friend. It's so good to hear from you. Sometimes opting for a lesser procedure is just the right choice! Education by researching gives so much power to make these decisions! Right?