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Benign Cramp Fasciculation Syndrome
Brain & Nervous System | Last Active: Oct 7 10:57am | Replies (36)Comment receiving replies
Hello. First time poster long time viewer. Question for anyone who'd like to chime in. I've been dealing with muscle fasiculations for over a year now. My calfs are pretty constant. I also have some exercise intolerance and fatigue. I've seen two neurologist and have done two EMGs within the past year which were both normal. They both said I was suffering from benign fasiculations. I did a bunch of blood work as well. Was Considering coming to Mayo for a third opinion. Was wondering if anyone could chime in. As I was worried about mnds and I know normal EMGs and ncs point away from those.
Replies to "Hello. First time poster long time viewer. Question for anyone who'd like to chime in. I've..."
could possibly be small fiber neuropathy which is not determinable by EMG, only a skin biopsy. My SFN started with calf fasciculations and burning toes but I think there could be numerous causes.
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Hello @jhn48110 and welcome to Mayo Clinic Connect, although you joined some time ago but officially just posted today for the first time.
You will notice that I have moved your post into an existing discussion on the same topic so you can connect with other members like @birdbeep and @wendycad who have both commented recently and who may be able to share their experience with you as you look toward what you feel is next in your healthcare journey.
That said, you did mention you are considering Mayo Clinic for a third opinion so did want to share that you may use this link if interested in pursuing an appointment: http://mayocl.in/1mtmR63
Based on the appointments you've had with the other neurologists and the results/feedback they've shared, are you thinking this is something else or that there is more going on?