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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
Replies to "Hello @johnbishop Thanks for your reply. 21 yr ago I went thru a 13 hr surgery..."
Have you ever heard of Dr. Forest Tennant? He started a foundation for people with Arachnoiditis. He has a drug protocol that he recommends. He is retired, but he is very active in the foundation and tries to help people. I don't know if it would help you since you have had it for so long, but it may be worth a try. The problem is finding a doctor that will follow the protocol since it is not accepted by the mainstream medical system. Here is the link http://arachnoiditishope.com/. I am sorry for your pain.
@zailey, Thank you for sharing your experience and journey that started with the tumor being removed from your lower spinal cord. I know it has to be extremely difficult for you and the pain can be overwhelming at times. I like your visual of watching the sunrise over the Great Smoky Mountains. It's those little moments of joy that keep us going at times. There is another discussion where members have shared their neuropathy journey and what they have found helpful. You may want to read through the posts to see if you might find something helpful.
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Since your neuropathy journey started with a tumor being removed from your lower spine I'm wondering if @jenniferhunter may have some information or suggestions for you. She started a discussion on Myofascial Release Therapy (MFR) which many people have found beneficial - https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/