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Mac question: Arikayce Inhaler Antibiotic
MAC & Bronchiectasis | Last Active: Mar 5, 2022 | Replies (73)Comment receiving replies
@janeta I could not communicate for a few weeks but for the rest of the time on Arikayce I could communicate verbally, just a little but raspy. Yes a lot of us will not be able to get rid of this completely, I go to dr next week because my 3 antibiotics do not seem to be doing a lot, so I may be on the same regime as you, will be interesting. What 4 are you on ,Meropenem IV, arikayce, clofazimine and 1 other. yes amikacin is the IV version and arikayce the inhaled. So sorry you have had awful side effects, not nice. Take care Heather
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I'm currently taking IV Meropenem, Arikayce, Moxifloxacin (Avelox), Azithromycin. The Clofazamine may be started next month. I had no idea that I had anything wrong with my lungs until 2018... no idea that I had bronchiectasis or MAC (no cough!, but extreme fatigue that my PCP didn't pick up on for the couple years I mentioned it) .... I believe it could have been found many years prior .... and I wish it had. "It is what it is." *** As an additional note, I initially, in 2018 started with Rif, Eth, and Azithro, but 9 months in, had a "metabolic implosion" (MY words). A sudden severe reaction to the meds - sepsis, acidosis, hemolytic anemia, kidney failure, kidney dialysis, blood clots, atrial fib, internal bleed. 3 weeks in the hospital; 2 wks in ICU and on dialysis; 6 months to recover. I think I still have PTSD from that horrible event. Then, no meds for a year .... now re-started on the second-string of meds. *sigh* **