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Mac question: Arikayce Inhaler Antibiotic
MAC & Bronchiectasis | Last Active: Mar 5, 2022 | Replies (73)Comment receiving replies
It's good to hear that the voice will come back. Not being able to communicate verbally is isolating and discouraging, but we have to look for the greater good that will come out of this - like getting rid of as much of this horrible bacteria as possible. (My ID doc says we'll likely not get rid of it completely which makes me very sad, to put it mildly.) Thank you!
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@janeta I could not communicate for a few weeks but for the rest of the time on Arikayce I could communicate verbally, just a little but raspy. Yes a lot of us will not be able to get rid of this completely, I go to dr next week because my 3 antibiotics do not seem to be doing a lot, so I may be on the same regime as you, will be interesting. What 4 are you on ,Meropenem IV, arikayce, clofazimine and 1 other. yes amikacin is the IV version and arikayce the inhaled. So sorry you have had awful side effects, not nice. Take care Heather