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Almost pure blood and blood clots in urine

Kidney & Bladder | Last Active: May 15 9:54am | Replies (61)

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@so1frustrated

Ginger and others, I have been diagnosed with high-grade urothelial carcinoma of the ureter pelvis and ureter. Just posted in hopes to have response from someone going through this. Will be meeting with surgeon this Friday and he has already said he want me to have neoadjunctive chemo (chemo prior to surgery)....I told him to please schedule surgery asap (he said at best it is at least month out) as right now do not want to chance repercussions from chemo. He is going to set up meeting with oncologist (thought he was...kind of confusing) to talk about the proposed chemo. As far as they can tell, praise God, it has not metastasized. Trying to find anyone who is/has gone through this. It is basically treated like high-grade bladder cancer......the "type" I have been diagnosed with is rather rare. Thank you all for being part of this wild journey!!!!

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Replies to "Ginger and others, I have been diagnosed with high-grade urothelial carcinoma of the ureter pelvis and..."

@so1frustrated While I am glad to hear from you, as always, I am sorry to hear you now face this. This weekend you were on my mind, and I was going to post to you. Did they give you a stage of this cancer?

You have been telling them something isn't right for a while, now. Your support network beside, boyfriend, his daughter-in-law, your own children, plus all of us here, are right there for you. Check with your medical team to see if there is any patient support group you can contact in your area. Perhaps American Cancer Society has some ideas?

Reach out to us, we're here!
Ginger