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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Hi all. Mary Jo here. Now going to Mayo Florida next week. Had an appointment today but my grand daughter thoughtfully gave me strep throat so had to cancel for a week! It has been so quiet on the site I thought all had been cured! Just want to add that we can put all sorts of stuff in our home for filtration, but still have to exist outside of our bubble. Fountains, misters, sprinklers, anything with water outside contains these mycobacterium. You can avoid some contact- don't sit under "cooling misters", give lots of "leeway" to fountains, go the other direction if sprinklers are running, but the main thing we can do is try to exercise, eat right, gets lots of rest, avoid stress (Haha) and try to build up our immune systems. Right now mine is definitely down as I have had shingles and then strep. Hope Dr. Leventhal has some magic to work on me next week 🙂 Happy, healthy thoughts to all. Stay positive even though sometimes that is very hard.
Replies to "Hi all. Mary Jo here. Now going to Mayo Florida next week. Had an appointment today..."
Thanks Terri- It has not been one of my better months. But I always remember that others are worse off than I( well at least I try to think that way!). My grand daughter lives with us for now and is 5 years old. She is a joy even with all the diseases:). I am really looking forward to my appointment next week. I laughed when I called to see if Mayo had received my medical history from Duke- they said "yes, all 79 pages of fax". Yikes! That is scary! Have a good day.
@maryjo2sell, Hi Mary Jo, good to hear from you! What great information and thinking for our Forum pages .. indeed we can be so careful inside our home .. BUT we do indeed exist outside our homes and 'armed is forearmed'! Just being reminded of the things you mentioned helps us! Good luck next week .. be sure to let us know how it goes.
BUT what lousy news about the shingles and then strep!! Question: did you get the Zosters (shingles) shot? I had mine in 2007 .. BUT in doing a bit of research I found the below that I thought was interesting .. since my shot was in 2007 I now have zero immunity! Personally I am going to wait for the new Shingrix shot .. hopefully the FDA will approve it soon! Shingles is a bad dude!
https://well.blogs.nytimes.com/2015/11/12/ask-well-a-booster-vaccine-for-shingles/?_r=0http://www.fiercepharma.com/vaccines/first-shingrix-application-gsk-advances-toward-merck-market-duel
Again, keep us posted on your appointment .. hope it goes well! Hugs to you! Katherine
@maryjo2sell, Mary Jo, 79 pages IS a lot .. but that is a GREAT history .. history that will not have to be repeated .. verbally by you .. tests not repeated .. tests that can be compared to. Actually a really good foundation for you. Good for you that you did your due diligence and got all those records transferred so your new doctor will have a clearer picture of just where you have been .. and where you need to go now. Good luck! Hugs! Katherine
<br><br><br><br><br>Hi Mary Jo, what dates will you be at the Mayo?<br> <br><br>
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<br><br><br><br><br>Hi Mary Jo. My goodness ,it sounds like you have been through the wringer <br>girl! You got a double whammy with two things that can make you feel pretty <br>crummy. I hope Dr. Leventhal can get you squared away. I will be curious to <br>know what you think of him. I will be seeing him in June for my six month <br>check-up. Hang in there chicky! Hugs -Terri M.<br> <br><br>