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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Hello Posted by @laneyk, 1 day ago
Hello everyone. I have a praise report. I am 6 months off the meds and got sputum results today. No bacteria found. I am feeling so much better than I was 2 years ago. There is light at the end of the tunnel and life after MAC. I wish everyone could have the results I have had with this disease. I have not had the nerve to ask about reoccurrence, but I think I will in March when I see the doctor again.
Hello Elaine, I am answering you on the Main MAC & BRONCHIECTASIS page .. because EVERYONE needs to see your wonderful news!! I am so happy for you .. now just live your life .. don't worry about what MIGHT happen .. just delight in what IS!! Be in the here and now .. be joyful! We will be joyful with you! Sending you a hug! Katherine
Replies to "Hello Posted by @laneyk, 1 day ago Hello everyone. I have a praise report. I am..."
Hi @tessie, I think that part 'listening to our bodies' is SO important! We have been living in those bodies a LOT longer than any doctor has been treating us .. but as you said 'then right back following doctor's instructions'! Can't think of a better combo! It is smart of you to think through cause and effect .. raw food .. stomach cramps. That is exactly how I figured out my migraine triggers .. watching cause and effect.
In terms of the diarrhea .. have you seen any cause and effect there? For me personally I found 'regularity' by taking daily FIBERCON .. I took a cheaper generic form and that really helped me a lot .. twice a day worked for me. I am assuming you are taking a 30 to 50 billion probiotic daily for stomach health? Tessie, with your great attitude you will indeed "kick those critters in the butt"!! Hugs to you! Katherine (love that visual!)
Wow...what a milestone! Phew! Very happy for you in case you can't tell...!
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Katherine, congratulations and good work! I'm trailing behind you - June 10 presumed is my last day of MAC meds. I struggle with bouts of diarrhea once in awhile, and am beginning to wonder if, indeed I'm able to continue with meds. I listen to my body, took a day off meds, afterward right back on them following doc's instructions. What are we doing, or what have we done to our stomach thru all this? I think eating snack sunflower seeds/almonds isn't agreeing with me. I believe my cramps happened with raw food. I'm hoping to kick the disease in the butt - Lord love us.