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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Replies to "I joined this forum a couple of days ago and since then have read every post..."
You are lucky to get the quick diagnosis. I had my first bout of PMR when I was 57 and like you was very active, aerobics classes, weights, etc. It actually started the day after I got my a very good time in a 5-mile run/walk. I didn’t get a diagnosis for 2 months because I tried to heal it on my own (unsuccessfully). I was on prednisone for 2 years and then it was in remission for about 12 years. I am 74 now and on my 3rd bout. My first rheumatologist warned my not to lift weights over 2 pounds due to risk of tendenitis. I did have tendinitis twice and had PT to heal it. I also tried acupuncture and had side effects. One acupuncturist told me to avoid acupuncture when one has an autoimmune disease since it helps the immune system and makes the autoimmune disease worse. I don’t know if PMR is autoimmune or not. Be patient in reducing prednisone.
Welcome to our not so little club 😉. I too devoured the many posts and learned much from them as I realise you did too. Wish I could see a rheumatologist that quickly. I was diagnosed in February but can’t see a rheumatologist until June 4th. So much for having private health insurance. If it wasn’t for Mayo Connect I don’t know what I would have done. Thank you again to all those wonderful people posting about their experiences with PMR and prednisone.