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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@spencersok

My wife just received her Nebulizer and AFFLOVEST and I am wondering whether there is anyone else is using this combination to fight their MAC and Bronchiectasis. What type of scheduling you use for your treatments. It was recommended my wife to do both treatments, Nebulizering and Vest twice per day. We are thinking about doing them both at the same time...

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Replies to "My wife just received her Nebulizer and AFFLOVEST and I am wondering whether there is anyone..."
migizii | @migizii | May 15, 2021

In response to spencersok.....@migizii...this is what I do daily as directed by my pulmonologist but I have not had MAC yet and am very thankful. Perhaps this regimen will work to alleviate your wife’s symptoms and I do the treatments at the same time (2x daily).😊🙏🏽

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bnthorson | @bnthorson | May 16, 2021

I have active MAC and Bronchiectasis currently on meds, big 3 plus clofazamine. I use inhaler, nebulizer and then the vest 2 times daily. First, as soon as I wake up, and second late afternoon before dinner. That has worked for me. I will continue this even after Mac is no longer present .

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gej53 | @gej53 | May 16, 2021

I use my nebulizer and vest at the same time twice daily. The respiratory therapist had said it was perfectly fine and I think I get my best results when using them together. Good luck!

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