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Tapestry Results are In, What is your story?

Just Want to Talk | Last Active: Nov 30, 2022 | Replies (9)

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@colleenyoung

I'm tagging members @dazlin @suzanne2 @gator1 @blundquist @mollyv @mpeters @dsisko @johnbishop @tjgisewhite @birchlaker @ess77 @paula3166 @erober80 who are talking about Tapestry here:

- Anyone participating in the Tapestry DNA TEST? https://connect.mayoclinic.org/discussion/anyone-participating-in-the-tapestry-dna-test/

@Erinmfs, what, if anything, will change for you as a result of having this information?

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Replies to "I'm tagging members @dazlin @suzanne2 @gator1 @blundquist @mollyv @mpeters @dsisko @johnbishop @tjgisewhite @birchlaker @ess77 @paula3166 @erober80..."

My results explained why I had so much trouble at high altitudes. It didn’t add any knowledge about my health because I was already tested for common causes of cancer. It feels good to do something to help advance science.

Thanks for the reminder Colleen. I received my results a month or so ago and the Tapestry DNA Study did not find any DNA variants that would increase my risk for the three conditions covered by this test - Hereditary Breast and Ovarian Cancer (HBOC), Lynch syndrome (LS) and Familial hypercholesterolemia (FH). The ancestry part was interesting and was much more detailed with the breakdown than 2 previous ones I had including the free Genes For Good (https://genesforgood.sph.umich.edu/) and the Mayo Clinic GeneGuide. The others pretty much said I was 99% European ancestry. This one had a couple of 1.7% surprises. The really interesting parts to me were the Health Traits - I already knew Cilantro is not my thing and that brought a smile on my face.

I'm a Mayo patient, my next appointment is in July. The Tapestry study says it's putting your DNA information into your electronic health record. When I joined the study at the NIH, it was a DNA study. So, now the Mayo Clinic has what the NIH has! Not sure if that's good or bad, my goal was to see what the NIH was up to. That was several years ago now that I was at the NIH. I'm glad I don't have genetic markers for those awful diseases that the study was involved with, but I have other awful geneitic markers. I hope my efforts further science!

I finally got all my consents signed and sent in. I think it will be interesting. I have had DNA and genetic testing done and they are still unsure as to what is causing my cardiac, vascular, neurological and pulmonary issues. They can only tell me what each thing is they are unable to find what is causing it. I look forward to seeing what they come up with.