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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: 40 minutes ago | Replies (552)

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@jimhd

@bryanbay None of the usual pn meds helped me, including Cymbalta. A few months ago I restarted Cymbalta at 90mg at bedtime, but backed down to 60mg because of the awful muscle twitching. After a few weeks, I added 30mg in the morning, and I got a note from my neurologist this morning, suggesting that I increase it to 120mg, spread over the day. Lyrica helped a lot, but reactions sent me to the hospital, so I can't take it, though it's worked for a lot of people. My siblings all say that Gabapentin treated their pn pain.

So, we can't ever assume that what helps others will help us.

One thing I did was to meet with a pain therapist a couple of years ago for 6 sessions, and a couple of things she suggested still help me (some of the time). One thing I do is to focus on the pain and analyze the various sensations. Then I focus on the sensations that aren't pain. Another thing is to focus on a part of the body that feels good, with no pain.

Have you considered a pain therapist?

Jim

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Replies to "@bryanbay None of the usual pn meds helped me, including Cymbalta. A few months ago I..."

Thanks @jimhd, After some googling it appears Cymbalta and Amitriptyline (Elavil) are both used to reduce pn pain. I suspect its an either/or when it comes to those two meds. There are no side effects so far with the amitriptyline. I agree with your thought that each of us will find the drug combo that works best. I'm edging the gabapentin daily dose up from 1200 to 1500mg/day. So far, I have not considered a pain therapist, but will look into it.
Tony