Ear Tinnitus and Pain with Neuropathy

Posted by cwallen9 @cwallen9, Jan 29, 2019

Does anyone have severe tinnitus and ear pain with their neuropathy? I have small fiber and autonomic neuropathy and I have been getting severe tinnitus (roaring and high pitch noise) and a feeling of pressure and pain for the last month. I am wondering if the neuropathy and/or medications are causing it. I am on gabopentin, cymbalta, and NSAIDS.

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Sue, Volunteer Mentor | @sueinmn | May 12, 2021

In reply to @catstx "Has anyone heard of Maritime Pine as an herb for tinnitus? I read about it recently..." + (show)

Here is the only recent information I could from a non-commercial source. https://medlineplus.gov/druginfo/natural/1019.html
And you can click the tabs here to see what medicines or conditions might have a negative effect or interaction from using Maritime Pine (Pycnogenol). https://www.webmd.com/vitamins/ai/ingredientmono-1019/maritime-pine

So, if it appears from the above information that it would be safe for you to try Maritime Pine, you may want to consider it. If so, let us know if it helps.
Sue

jimmy 370 | @jimmy370 | May 18, 2021

I had tinnitus long Before neuropathy!

Valerie | @lacy2 | May 18, 2021

I did too jimmy370. Many years before and although odd didnt hurt, no ear pain or issues, just the odd clicks (in rhythmic sequence), and few belss and whistles. Then 2016 neuropathy after taking an antibiotic (quinoline) for UTI. 2 weeks after finishing pills which can occur months later. Compared with other issues in my life I managed with no meds esp. since allergic to lots. But its been the last year or so, esp. after taking Vancomycin and Fosfomycin and throat infection etc., that month by month and year by year and eustatian tube issues I now have tinnitus 24/7 machinery noise, pain in ears/jaw area/some hearing loss, fullness and pressure in ears, and the neuropathy is more painful and added bonus this year internal tremors. It still is difficult to uncover exactly what caused which and I have no family doctor now, but he didnt pursue anyway....not interested. So am on my own to try and cope day by day taking Tylenol and such... (like many on here have other medical issues like Glaucoma, ibs-d, fecal incontinence and emotional problems).. so it can get quite depressing and people wonder why I feel sad!! Kudos to those who are getting through with one or ten issues and keep smiling, as I can't. Best of luck to you.... J.

bowerstx | @bowerstx | May 30, 2021

In reply to @wolfbauer "What I was trying to explain is that people mistakenly think that Guillain-Barré is only caused..." + (show)

@wolfbauer

What I was trying to explain is that people mistakenly think that Guillain-Barré is only caused specifically by the vaccine itself. It's caused by an autoimmune response to the genetic material of the flu virus which is present in both the vaccine and (obviously) the contagious flu virus. The flu vaccine contains inactivated flu virus (basically chopped up flu virus genetic material that your immune system recognizes as the flu and [usually] creates antibodies against the strains of the flu virus contained in the vaccine). Yes, it sounds like you have Guillain-Barré, and if you do, it's clear the vaccine caused it. I'm trying to convey that many people refuse getting the flu shot because of GB, but everyone has the same statistical chance of getting GB from catching the flu from a doctor's office door knob as they do from the flu shot (in my opinion, if the risk is equal, why not get the flu shot and bolster your chances of being immune to the seasonal flu virus?). The flu shot doesn't always cause flu-like side effects (the majority of people who receive the vaccine experience no side effects save for perhaps a little soreness in the muscle from 0.5mL of vaccine being injected), but I can tell you from experience, when it does cause flu-like symptoms, it can knock you on your butt. It's a matter of semantics, but it's not technically the flu... it's impossible to contract the flu from the flu vaccine (the constituent parts of the inactivated virus are incapable of causing infection or replicating; they've been destroyed). I'm not trying to be a pain, I'm just passionate about the topic and trying to educate. I went to college to be a doctor of pharmacy, and I'm licensed by the American Pharmacists Association to vaccinate patients with all vaccines (depending on the state; in RI where I went to school, we were able to give out all vaccines. I live in, and grew up in, NY, and we only used to be able to administer the flu and pneumococcal vaccines, however they have allowed pharmacists to administer many more vaccines in recent years). I have been administering vaccines since I was 21 (I can tell you, women seem to have no problem with needles, and men either whimper, or they try to be tough, flex their muscle, and all that does is cause the needle of the syringe to tear through the muscle instead of sliding through the fibers more easily in a relaxed muscle). Anyway, after my long rant, I'm glad to hear you don't have MS, and if you do have GB, it sounds like you're on the mend! Before I was diagnosed with all my health conditions such as small fiber neuropathy and autonomic dysfunction, one of my specialists was convinced I had MS, and I went through the same tests... I can relate to your relief of not having it. GB sucks, my great uncle had it really bad; I wish you the best of luck at your appointment and through your recovery and hope you feel better soon!

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Was curious if you’ve heard of others getting it from the covid vaccine? (SFPN)

zekeflash | @zekeflash | May 31, 2021

In reply to @jimmy370 "I had tinnitus long Before neuropathy!" + (show)

Like you I had tinnitus long before neuropathy, but I am wondering if the neuropathy occurred b/c of the tinnitus. Is there any research that shows that?

avmcbellar | @avmcbellar | May 31, 2021

@zekeflash I had developed tinnitus 16 years ago but it had nothing to do with neuropathy. I now have neuropathy as a result of a surgery. I don’t know if tinnitus can develop from neuropathy. You should ask your ENT doctor if there is a relationship.

total99 | @total99 | Jun 1, 2021

I have the same combination - just emerged. What was your official diagnosis?

total99 | @total99 | Jun 2, 2021

In reply to @total99 "I have the same combination - just emerged. What was your official diagnosis?" + (show)

No diagnosis to date. Local doctors in Charleston,SC have no idea. Going back to Mayo, Rochester next month to pursue with neurologist there - Doctor Dirk.