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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
At the risk of repeating my story I will carry on.
Five years ago dignosed withGPA which evolved into PMR.
Happily down to 3mg pred with only some lingering left piriformus pain and arthritic right knee slowing me down. 75 year old male playing golf couple of times a week and walking the course.
Then came MODERNA one month ago, 11th March'21
Next day I had a clear flare up in both area. It only got worse for a week and I didn't even imagine that the vaccine was a factor. The pains were worse than even when I was diagnose. Walking became a real problem. Then the penny dropped.
I am convinced the vaccine has got to me. I tried to call my rheum. doctor but no contact so I upped the Pred to 10mg. for 2 days.This cleared my pain.
Then I contacted the doctor and she said 5mg/day.
This has not improved my pain. She said better take Tylenol than Pred. Well I agree but Tylenol doesn't work I'm afraid.
So I have tried 9mg for the last few days. Still no good.
In Canada we are told the next jab is 4 months after the first.
My dilemma is, although I am determined to get the Second shot, I don't want to arrive for my shot with a elevated dose of prednisone in me. The nurses will not be pleased I am sure.
The MODERNA will not be as effective as it might be, so I'm told.
Also the after effects might be worse than after the first shot.
So in summary, I am convinced the mRNA vaccines for patients with Polymyalgia Rheumatica are problematic.
I see quite a lot of people on this and other sites who are suffering. Some people with new PMR diagnosis, some with PMR in retreat and some like myself who were doing fine on a low dose.
I admit to being a bit worried and confused.
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Replies to "At the risk of repeating my story I will carry on. Five years ago dignosed withGPA..."
I am experiencing a severe flare up of PMR after receiving the Pfizer vaccine.
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My first Moderna vac 1/22/21 initiated me to PMR. I was diagnosed within a couple weeks. So the connection to the vaccine seems obvious. In researching, I found articles that suggested a connection between PMR and vaccinations or viruses acting as triggers. Looks like a Bingo.
Back in Feb. my GP and my Rheumatologist couldn’t say whether it would be appropriate for me to get the second Moderna dose due in late Feb, so I have waited. On my second visit with my Rheumatologist last week, he suggested I go for the second shot. He speculates that the prednisone I am taking may protect me from a kicked up inflammation by the Covid vax? Note: I am still dealing with this initial exacerbation and trying to reduce my pred from my current 20 mg (started at 40mg in Feb). Am considering that a replay of that inflammatory response doesn’t sound like a risk I should take when I am STILL inflamed?
But at his suggestion, I went ahead and checked into the the on-site clinic he told me to try. It was using Pfizer but the nurse thought since I was outside the 4 -6 wk window for the 2nd Moderna shot, that the Moderna had been processed out of me, and I should begin over by taking both the first and eventually the second Pfizer vaccines she had. I adjourned to do more research.
But hearing of these PMR exacerbations in this group, I am disinclined — it seems no medical science has been exploring and tracking our particular difficulties. We are on our own.