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2021 LBD Summit Recorded Content & More! Dec 6, 2021 | By Jodi Melius (@jodimelius)Comment receiving replies
Hello @hbjuniperflat
I would like to welcome you to Mayo Clinic Connect, a patient support group. On Connect we are not medical professionals but we share our experiences in order to encourage each other. I can understand your need for information, support and, connect with others who are also caregivers.
I would like to invite you to join one of the Connect discussions that might be helpful to you. Here is a link to a discussion, https://connect.mayoclinic.org/discussion/lewy-body/.
If you care to share more, what is your husband's most troublesome symptom right now? Is it walking, gait, balance, sleep problems, etc.?
Replies to "Hello @hbjuniperflat I would like to welcome you to Mayo Clinic Connect, a patient support group...."
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My husband's most troublesome symptoms right now are sleep problems (diagnosed with REM Sleep Behavior Disorder) and short term memory loss from two strokes. In addition, the LBD adds lots of confusion to each day. Example: the other day he asked me, "What's the cowboy's name over there?" When this happens, I don't know if he is hallucinating, or if he is just not able to come up with the right word to describe what he wants to know. It actually turned out to be the latter in this case... he was asking about a cactus. Keeps me on my toes, that's for sure.