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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Pam, this is how Colleen said to do it .. hope this helps! Hugs! Katherine
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Replies to "Pam, this is how Colleen said to do it .. hope this helps! Hugs! Katherine MAYO..."
This is Pamela - thank you everyone for all the very useful information - I read my Digest diligently every morning and learn something new each time. Yesterday, Jan 29th someone mentioned getting tested AFTER the 18 month treatment for MAC and that the tests should be done at least 3 times and show no signs of MAC before one can feel they are in the clear. How often should the sputum tests be done after the 18 months?... every 6 weeks, every 3 months?.... I finish up my 18 month regime in April. Pam
@pamelasc1, Pam, I can ONLY speak for myself about what testing is correct after going off antibiotic treatment. Personally I had quarterly check ups with my doctor including sputum cultures initially .. then as he put the 'puzzle' together based on the results of the sputum culture/Xray/Pulmunary Testing ..deciding when to go to semi annual .. then to annual .. sometimes then back to semi annual. It is ALL up to your GOOD Infectious Disease doctor who is KNOWLEDGEABLE about MAC. But it is my understanding there SHOULD be follow up check ups to CONFIRM that the MAC in your lungs is STILL negative/NOT colonizing. Without CONTINUING checkups (I expect for my life time) we have NO idea if the MAC is colonizing .. OR IF we are still negative! Those nasty critters DON'T disappear .. just lie there in waiting .. that is why it is so important to take good care of ourselves .. eat healthy .. exercise .. stay positive .. be serene! Hope this is helpful. Katherine
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thanks so much Katherine! Pamela