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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)
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@mtnyankee

I have primary SS and have been taking plaquenil for almost four years. It was prescribed for a new diagnosis of inflammatory arthritis. Currently my tongue is cracked and burning and came to look for help. This doesn't happen often so I can't say plaquenil helps or not but my other symptoms are better than before I started. Not completely but better so it might be worth a try.

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Replies to "I have primary SS and have been taking plaquenil for almost four years. It was prescribed..."
Becky, Volunteer Mentor | @becsbuddy | May 10, 2021

@mtnyankee I’m hoping that other members in this discussion might have some good information for you. Has your doctor seen your dry, cracked tongue? It sounds like you may have dry mouth caused by the plaquenil. Are you using artificial saliva and drinking plenty of water?

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zenk | @zenk | May 18, 2021

So glad Plaquenil has helped your symptoms in general. I have had the same experience with Plaquenil. I have very dry mouth but I had it before I started Plaquenil. Maybe you have some type of fungus related problem in your mouth. I had to take Nystatin oral rinse and spit for a monilla fungus in my throat . I think the doctor would take a culture .

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