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steve9900 (@steve9900)

Terry Wahls Protocol

Polymyalgia Rheumatica (PMR) | Last Active: May 13 9:15am | Replies (7)

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@johnbishop

Hello @steve9900, Welcome to Mayo Clinic Connect, a welcoming online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for starting this discussion. I am a fan of Dr. Terry Wahls. Reading her story of treating her symptoms of Multiple Sclerosis and going from a wheel chair to riding her bike daily was inspiring and gave me some hope when I really needed it. I never got to the strictest version of her diet but did follow the beginners version and that helped me change my lifestyle and I learned to eat healthier. I followed it closely for a couple of months after being diagnosed with small fiber peripheral neuropathy and while it didn't help with the numbness I have, it did improve my overall health. I think it's a win-win for you to give it a try.

For those not familiar with Dr. Terry Wahls, here are a few links to learn more about her and the Wahls Protocol.
— About Dr. Terry Wahls: https://terrywahls.com/about/about-terry-wahls/
— Dr. Terry Wahls Diet for autoimmune disorders: https://www.wellandgood.com/wahls-diet-recipes/
— Wahls Protocol Complete Food List (PDF): https://elmmedicine.ca/wp-content/uploads/2019/07/Wahls-Protocol-Complete-Food-List.pdf

My PMR has been in remission since 2018 and I do give some credit to the eating habits and nutrition that I picked up after reading her book The Wahls Protocol. I'm surprised that you are able to avoid taking prednisone to help with the PMR pain. When my PMR was active both times, it was really debilitating and not taking a pain medication wasn't an option for me. Do you mind sharing any coping mechanisms you use for the pain associated with your PMR? Were you diagnosed by a rheumatologist?

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Replies to "Hello @steve9900, Welcome to Mayo Clinic Connect, a welcoming online community where patients and caregivers share..."

At first, in January, a doctor diagnosed it fairly quickly in my first meeting with him. I spent the next few months seeking a second opinion with somebody I liked, but by then I had diagnosed it as PMR through heavy research. There was really a process of elimination because I had no other symptoms that matched any other disease and I looked at hundreds. I think what confused me from realizing it was PMR was because of my extremely low c r p values. Then I found someone who said that 10% of PMR patients have normal.crp values. My pain had started a couple months before I saw the first doctor and I had an early onset of carpal tunnel syndrome, which I later found out happens frequently in early onset of PMR. I got a cortisone shot in my hand which solved that problem and hasn't yet gone back to that credible pain I had in that hand. But I exercise it every day since then. My condition is not extremely bad but it is debilitating in pain in the morning, which subsides in the afternoon and then comes back the next morning like the movie Groundhog Day. I can still do a lot of things except I am way more fatigued. It takes all morning for me to have movement become a lot easier. I'm also working with self-hypnosis which I strongly believe in. I'm in my first few days of seriously pursuing this diet after researching it for a couple of weeks. I do have a doctor who warned me of the side effects of prednisone. He didn't know about Terry Wahls but he's open to something new and I believe I have the strength to do this. I am retired so I can concentrate on it. Ironically, I never had any medications or health problems all the way up to the age of 72, when this started last fall. Plus I always concentrated on eating very healthy, which made this all the more of a surprise. That will make the new diet a lot easier , but I still had to give up legumes , brown rice and bread. I think too much bread before this came on, with the gluten, might have contributed it. And I really hated giving up red wine. I had a lot of changes in my life for a few months before this came on and I did go off-script in my diet previously, but never to the extreme. This is all a bit distressing and I'm trying to overcome that distress. I have a very positive attitude. Thanks for your interest

John, I realized I forgot to answer your questions at the end of your last comments. I am not taking anything or doing anything to deal with the pain. I don't think my pain is bad as many that I've heard about. I've never had a problem getting out of bed oh, but the pain is very high in the early morning. After an hour moving around or just drinking coffee and reading the pain is a lot better. By late morning I can move around a lot enough that I can walk about a mile, which is somewhat painful but not that bad. The problem is when I go to bed because it gets worse from the moment I get in bed until late morning the next day. The pain is there all day but not extremely bad . So, my plan is to just stick it out, hoping that it doesn't get worse, and pursue the Terry Wahls Protocol diet. In answer to your second question about a rheumatologist, I never saw one. But two doctors agreed that it was PMR. The second doctor thought it would be a waste to see a rheumatologist to help in the diagnosis . The second doctor also pointed out something that I had already learned through my research; that diagnosing PMR is almost really ruling out many other diseases. I had already done that after seeing the 1st doctor, looking through symptoms for probably 50 + diseases. I've also learned that the ultimate test for PMR by a doctor is if you react to prednisone positively. In fact, what I've heard is that this is how many doctors reach their diagnosis ; how you react to their prescribed medicine . That seems like a strange way to seek a final diagnosis and it really bothers me. After all, prednisone treats the symptoms and controls the inflammation. It does not go after the cause. Functional medicine, which Terry Wahls is promoting, I once heard this quote from a doctor of functional medicine: traditional doctors stop thinking once they've reached the diagnosis; functional medicine doctors start thinking after they reached a diagnosis. I'm hoping this will work out, because I don't want to take any medication especially prednisone. But I'm also concerned that never say never. And who was it that said: if you want to hear God laugh, make plans

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