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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
It's a daunting prospect. Unfortunately, if you don't fight for yourself no one will. Especially with autoimmune diseases, from the little experience I have, they are extremely difficult to identify and diagnose. I think you learn that if you don't ask you won't get. So the more prepared you are the better your chances. I'm lucky in that I stumbled across this space, it gave me the knowledge and confidence I needed to push for answers.
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@change25 As the days go by I can really see your neuroscientist/economist persona coming thru! Keep on keeping on. But be sure to let us know how you’re doing. Becky
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Fortunately, there is a wealth of medical resources on the internet. So, I know I can’t diagnose my ongoing, as yet undiagnosed symptoms, I nonetheless have some leads based on what my neurologist thinks and my labs. So like yourself and others in this discussion I’ll keep up my research while I continue in my queue to see the specialists! At least I’ll have the knowledge to question what they say if I’m not sure I agree with their recommendations.