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Coughing up blood normal?

MAC & Bronchiectasis | Last Active: May 11, 2021 | Replies (17)

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@lorifilipek

@beatrixflower HI! Was this the only time you've coughed up blood in the 3 years?

I've coughed up about 2-3 TBS blood twice over the past 3 years. Both times it was a combination of red blood and clots, and I felt it come up. I don’t recall “hearing” it, but I’m also older and don’t hear as well as I used to.:-) The first time, I went to the ER and that, eventually, led (after about 1 ½ yrs) to the diagnosis of bronchiectasis and MAC. The second time was last year when I was in another state from my infectious disease doctor. She (my ID doctor) suggested I go to my PCP there and have her check my vitals, especially my oxygen levels. They turned out to be fine and I felt fine except for being scared because of the blood. I now have a pulse oximeter and check my own oxygen level periodically. I cough and bring up minor sputum in the mornings, but don’t really have any other symptoms. I don’t take any antibiotics. I exercise/walk 2-3 miles daily. Recently, I started nebulizing 7% saline once daily in order to, hopefully, keep my condition from getting worse. I agree with Bill (@poodledoc) that you aren't likely to choke from the mucous--it just feels icky until you get used to it.

I've been investigating whether coughing up blood may actually be a good thing in MAC. In my reading of MAC articles, I found one called "Retrospective study of the predictors of mortality and radiographic deterioration in 782 patients with nodular/brochiectatic MAC lung disease" by Gochi et al. ( https://www.ncbi.nlm.nih.gov/pubmed/26246077) From the article, the women with bloody sputum fared the best. I've been trying to find out why.

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Replies to "@beatrixflower HI! Was this the only time you've coughed up blood in the 3 years? I've..."

Hi Lori,
Thank you for your response. Yes, this is the first time I have ever coughed up something this red. Years ago before I was diagnosed, I coughed up a ton of mucus with a small bit of blood in it. Last night it was all dark red, the entire thing. That was why I got nervous! That is really interesting about the article you found. I will read it today. I posted another post last night about the nebulizing. I have a new doctor as of this past year and I asked her for the 7% saline but the prescription (I haven't tried it yet) is for 0.9%. I wondered if that is how everyone starts out to see how well you tolerate it or if she misunderstood me and I just need to ask again. Did you begin on 7% or work your way up?
Thank you again for your response,
Warmly,
Darla

My story is very similar. I have coughed up blood on about 4 occasions in the past almost 4 years. The first time led to my diagnosis of bronchiectasis and MAC. I have very few other symptoms except coughing up sputum after nebulizing saline in the morning. Antibiotics for a year did not eradicate the MAC.