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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
I understand what you are saying @change25. I was much older than you when I discovered that when you have a hard-to-diagnose problem, you need to be persistent, even if means being irritating. I don't mind being irritating now because I realize that persistence is the best way to get and to keep the attention of your medical team.
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It's a daunting prospect. Unfortunately, if you don't fight for yourself no one will. Especially with autoimmune diseases, from the little experience I have, they are extremely difficult to identify and diagnose. I think you learn that if you don't ask you won't get. So the more prepared you are the better your chances. I'm lucky in that I stumbled across this space, it gave me the knowledge and confidence I needed to push for answers.