Amanda, yes, I was diagnosed with TS-HDS about four years ago when I began experiencing peripheral neuropathy. My neurologist has not been helpful outside the diagnosis,; consequently, after research on the internet, I found Dr Todd Levine in Scottsdale, AZ who lead the clinical study of IVIG at Beth Israel in Boston on patients with the TS-HDS antibody. After biopsies, it was determined I had SFN. I am not on any medication as I can tolerate the shooting pains and numbness at least at the present time. I am curious as to whether any information is known on the origins of this rouge antibody, average age of onset and how many people have benefited by diet and exercise.
I could not believe I found this Mayo website on the subject I have been pursuing for years! Thanks, Mayo Clinic!