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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)
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@johnbishop

@ingekunga, A collagen peptide supplement may help with the skin and hair side effects. My wife and I both take a tablespoon mixed with water or any beverage daily. It dissolves easily and is tasteless. It has fixed the brittle fingernails for both of us and is also good for skin, joints and hair. I would discuss it with your doctor first. I was on prednisone for 3-1/2 years the first round with PMR and 1-1/2 years the second time around. I was always concerned with my skin being thin and easily bruised.

Here's some more information:
Daily oral supplementation with collagen peptides combined with vitamins and other bioactive compounds improves skin elasticity and has a beneficial effect on joint and general wellbeing: https://www.sciencedirect.com/science/article/abs/pii/S0271531717311508

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Replies to "@ingekunga, A collagen peptide supplement may help with the skin and hair side effects. My wife..."
ingekunga | @ingekunga | May 9, 2021

Thank you so much

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golfbarmie | @golfbarmie | May 10, 2021

At the risk of repeating my story I will carry on.
Five years ago dignosed withGPA which evolved into PMR.
Happily down to 3mg pred with only some lingering left piriformus pain and arthritic right knee slowing me down. 75 year old male playing golf couple of times a week and walking the course.
Then came MODERNA one month ago, 11th March'21
Next day I had a clear flare up in both area. It only got worse for a week and I didn't even imagine that the vaccine was a factor. The pains were worse than even when I was diagnose. Walking became a real problem. Then the penny dropped.
I am convinced the vaccine has got to me. I tried to call my rheum. doctor but no contact so I upped the Pred to 10mg. for 2 days.This cleared my pain.
Then I contacted the doctor and she said 5mg/day.
This has not improved my pain. She said better take Tylenol than Pred. Well I agree but Tylenol doesn't work I'm afraid.
So I have tried 9mg for the last few days. Still no good.
In Canada we are told the next jab is 4 months after the first.
My dilemma is, although I am determined to get the Second shot, I don't want to arrive for my shot with a elevated dose of prednisone in me. The nurses will not be pleased I am sure.
The MODERNA will not be as effective as it might be, so I'm told.
Also the after effects might be worse than after the first shot.
So in summary, I am convinced the mRNA vaccines for patients with Polymyalgia Rheumatica are problematic.
I see quite a lot of people on this and other sites who are suffering. Some people with new PMR diagnosis, some with PMR in retreat and some like myself who were doing fine on a low dose.
I admit to being a bit worried and confused.

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