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At a loss, multiple consultations still no answer...any idea?

Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)
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@johnbishop

@change25 - I'm hoping you can let us know what you find out after your doctor and his colleagues meet. If you are looking for more information on the Parry-Romberg Syndrome here are a few links.

Parry-Romberg Syndrome Information Page: https://www.ninds.nih.gov/Disorders/All-Disorders/Parry-Romberg-Information-Page
Parry Romberg Syndrome - NORD: https://rarediseases.org/rare-diseases/parry-romberg-syndrome/

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Replies to "@change25 - I'm hoping you can let us know what you find out after your doctor..."
change25 | @change25 | May 8, 2021

Thanks as always John. Of course, he initially believed it was a b12 deficiency but my levels were on the upper range of normal. He doesn't have much experience so he's consulting with a neurologist before he sends me for an MRI scan. I've also got the dentist next week, where he's requested an X-ray as it can identify craniofacial changes linked to PRS. I'm just hoping that a conclusion can be made soon. I've already had to put my studies on hold along with missing out on two jobs offers but my health is my main priority I suppose.

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