It appears this topic has been left untouched for quite some time. It seems an excellent topic, especially for someone like me who has had his first visit to a neurologist only this past Monday. Although I've yet to receive a clear-cut diagnosis, I would welcome hearing from others what their early "suspicions" were, suspicions that eventually led to a peripheral neuropathy diagnosis.

For me, long before I even heard of PN (ten years ago?), I noticed that myusual good balance was going wonkers, especially at low-light times of day (dawn, twilight). I hadn't had any falls, or at least none that I thought might have been the onset of a Big Problem. Doctors, of course, always ask if you've balance concerns. If I answered 'yes,' the response was ordinarily along the lines of 'Ah, vertigo!' or "Dizziness, I see.' I'h have to protest: 'No, no, I've never felt dizzy. The room was never going round and round.' I found it maddening to come up with the right words to describe the sensation. Eventually, I did––or I came as close as I probably ever will: 'It feels like I'm walking on a ship's deck in a rolling sea––not a storm-tossed sea, just a rolling sea–––and I have a tough time walking a straight line.'

Over the years, I've seen many physical therapists. Even though they'd nod when I'd use mu rolling sea analogy. I'm convinced they thought 'Ah, vertigo!––or (sigh!) old age. (I'm 76.) It's been a long haul, leading up to my finally seeing a neurologist. Although I've yet to receive a diagnosis of PN, I know that's what she suspects. If it turns out all I have is old age (no surprise there), I'll be a happy camper. If it is PN … well, that's why I joined this forum.

Wishing you all well!
Ray