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Almost pure blood and blood clots in urine
Kidney & Bladder | Last Active: May 15 9:54am | Replies (61)Comment receiving replies
@so1frustrated Wrapping you in a big cyber-hug! No doubt your emotions were teetering on the edge, and everything overcame you all at once. And see, the world did end when you did break down like that. Did you feel a bit better when you regained your breathing and calmed yourself down?
Your attitude facing this is admirable, and shows your strength.
Holding you close in thoughts!
Ginger
Replies to "@so1frustrated Wrapping you in a big cyber-hug! No doubt your emotions were teetering on the edge,..."
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Ginger and others, I have been diagnosed with high-grade urothelial carcinoma of the ureter pelvis and ureter. Just posted in hopes to have response from someone going through this. Will be meeting with surgeon this Friday and he has already said he want me to have neoadjunctive chemo (chemo prior to surgery)....I told him to please schedule surgery asap (he said at best it is at least month out) as right now do not want to chance repercussions from chemo. He is going to set up meeting with oncologist (thought he was...kind of confusing) to talk about the proposed chemo. As far as they can tell, praise God, it has not metastasized. Trying to find anyone who is/has gone through this. It is basically treated like high-grade bladder cancer......the "type" I have been diagnosed with is rather rare. Thank you all for being part of this wild journey!!!!