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← Return to Erosive oral lichen planus
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Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)
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Good morning all. @deb1956 and @mrsdavis1 Welcome to Connect. Everyone here is a volunteer and we try to help each other through our own experiences. But we are not doctors, so cannot prescribe medications. I’m going to ask @emal2 and @microgirl and @jshdma and @artist01 if they could share their experiences with you. While we wait for them, can you tell me what you have done so far to care for the oral lichen planus?
Replies to "Good morning all. @deb1956 and @mrsdavis1 Welcome to Connect. Everyone here is a volunteer and we..."
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@deb1956 I was asked to comment on OLP. Unfortunately I don't have good news for you. This started 6-7 years ago. It is still there, now more like burning mouth syndrome. I have seen top docs in NYC and Boston. They have no answers, except that it often goes away. Mine did not. At first I was treated with a couple of steroid shots. They work for a short time, then it comes back. It has progressed to the point that it affects my speech and has distorted the shape of my mouth. I was told that government websites contain articles by people who treat OLP or BMS, but I have not had time to investigate the great number of articles found there. Hope you have better luck.