Hello-I can hear the pain in your words and feel so badly that you are not being heard by doctors. I was diagnosed with oral and vaginal about 6 months ago. My dentist initially mentioned it and referred me to a periodontist in order to try to bring my gums to health. He did the biopsy for diagnosis and then referred me to a dermatologist who is a specialist in LP. (My gyno. said there was no sign of LP down there, but the specialist said, yes in fact it is there as well). I am using clobetesol gel orally 4x week at this point; originally it was every night plus minocycline. I also use a gel vaginally and I swish with an anti-rejection medication 4x week as well. I have seen some difference in my mouth-the extreme redness seems better-I am trying to figure out what foods or liquids affect my mouth. My tongue often feels as if it has been scraped. Stress is supposed to bring it on and I am stressed at the possibility of oral cancer developing as I have had two areas on my body with squamous cell carcinoma removed in the past. I am insulted by the "geriatric" reference! You are so young and with four children-so very busy! I hope you find relief soon.