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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@miriamgray1

Hi Marianne - so sorry to hear you’ve had a relapse. I’m also new to this site. I developed PMR like symptoms following my first Pfizer jab. I also had a chest infection so was not out on prednisolone for 8 weeks. I started off at 20mgs abd am now down to 10mgs for 6 weeks and then to 5mg/10mgs on alternate days, but have noticed shoulder aches and swelling in hands again.
Am guessing there is definitely a link to the vaccine and have been advised not to have a 2nd. As I said I am new to all this and finding my way but reassuring to read other people’s stories
All the best
Kate

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Replies to "Hi Marianne - so sorry to hear you’ve had a relapse. I’m also new to this..."
John, Volunteer Mentor | @johnbishop | May 7, 2021

Hello @miriamgray1, Welcome to Mayo Clinic Connect. I'm sorry to hear you also had PMR like symptoms after your 1st Pfizer vaccine. One of the keys to tapering prednisone is to do it slowly as many of us have found out by experience. Have you been diagnosed with PMR by a rheumatologist?

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daisy12345 | @daisy12345 | May 7, 2021

Wow Kate, now I am wondering if mine is related to the vaccine. So much to learn about vaccines. I got a shingles vaccine last week and I believe it has increased my fatigue. Hearing people’s stories is so validating. Thank you and good luck.

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