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@ess77

Julie, I just found your site and read only this message. Got excited....you're the first person I've heard use the term 'crickets' when describing tinnitus sounds. I also have a 'surging' sound, almost like fluid or water but not quite. strange how the crickets seem to be with me most of the time, varying loudness and then there's the additional sound occasionally. I've dealt with this mess for 40ish years with no help, of course, as there isn't anything to do, is there?

And, yes, I am losing my hearing. Both ears are about the same, according to the testing, although the right ear is the worst w/tinnitus and also the fullness feeling. I think the right ear hearing is much worse. But, apparently not.

The ear drums seem to be fine now, no fluid back up or other problems. It seems the feeling of being stopped up, right ear, apparently is caused by extreme dryness???? I'm using hydrocortisone cream on a q-tip per doctor's orders, inside both ears every day or so and it's helping some. Doctor said it is slightly inflamed from the dryness? Don't really understand, but the cream is helping some.

I also have Sarcoid, since age 40, now 74, comes and goes. On steroids as needed. Just found some in eyes so that's now being treated well. Other autoimmune things also....

I have a visit next Monday with the hearing aid specialist at Mayo Jax. I bit the bullet and admitted I need hearing help, have for years and it's beyond acceptable now. I've been using the text on the tv for a couple years just to understand sentences. Otherwise, it's lost. News I understand usually as they speak differently, looking into the camera. Conversations in person are difficult as well. And, I'm totally lost with any background noise.

I considered getting ear buds of some kind, but decided to do this the proper way unless I learn of something real otherwise. It's so costly, I'm really concerned. But, this is important and a must, so I'm doing it now. Won't eat for a while....

I have hyperthyroidism, take daily levothyroxine medication. I spent a couple of days in Mayo hospital last November with hypothyroidism caused by over medication. It's well adjusted now. My entire body was out of whack. I was an emotional wreck, anxiety level high, sweating like a horse, blood pressure crazy, and so on. An interesting lesson on the effects of the thyroid.

I'm off now to read the rest of your messages and learn what you're discussing. Hope I wasn't too much of an intrusion....blessings to you, elizabeth

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Replies to "Julie, I just found your site and read only this message. Got excited....you're the first person..."

@colleenyoung Colleen, I just sent this message to Julie, I thought, but must have not clicked on your link below re thyroid and tinnitus. Can you help me get this to her????? I'm adding her address @julie04, I think? Thanks my friend. bless you, elizabeth

I'm pleased that you're going to bite the bullet with the hearing aids. They are terribly expensive. Many audiologists will allow a payment plan, but you may have to ask about that. Do it. Once you get them, be patient. Use every moment of the trial period they give you...which is way too short. Be sure the aids you get have telecoils. There are many ways to use them in noisy settings, but the fitters don't explain this very well, if at all. I don't want to badmouth the audiologists, but I do get upset with those who don't clearly demonstrate the options available in these expensive products. Some just pass over them; some explain but don't demonstrate. That's a shame. You won't know what they are talking about if they don't show you how they work. If you don't find the hearing aids helpful after a couple of weeks, take them back and ask for more help. Be assertive. Here's a link that has some information about telecoils. https://www.hearingloss.org/?s=telecoils It helps to take a 'consumer' approach. Good luck to you. Keep us posted.