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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@ingekunga

I am very interested in any information about adrenal glands not functioning especially any pred reduction schedule that is better to avoid this.

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John, Volunteer Mentor | @johnbishop | May 6, 2021

@ingekunga and @daisy12345 - I can't say that I understand all of this information but it does talk about the role of the adrenal glands while your PMR is active.

Adrenal gland hypofunction in active polymyalgia rheumatica. effect of glucocorticoid treatment on adrenal hormones and interleukin 6 - https://pubmed.ncbi.nlm.nih.gov/11950017/
Adrenal insufficiency in treated PMR: The tip of the iceberg - https://www.endocrine-abstracts.org/ea/0056/ea0056p44

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peggyp | @peggyp | May 8, 2021

@ingekunga @daisy Prednisone reduction. Below 10 mgs you should reduce by 1/2 mg.and/or no more than 10%. Pred reduction schedule from Dorset Lady: week 1: Sunday/Thur new dose; week 2: Sun/Tu/Thur new dose; week 3: SunTuWThu new dose; week 4: SunTuWThu &Sat new dose; week 5: all days new dose.
The above schedule is easy to stop if you find you are getting PMR pain.Once completed you should stay on the new dose until you are sure there is no flare. I am in my fifth year of PMR and have stayed at 3 1/2 mgs as I have other conditions that cause pain. My doctor has recommended staying at this dose as it is low enough not to cause negative effects. Some patients remain on 2 or 3 mgs for years.

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