Hi, sorry so long but wanted to update. My autism super surfaced but doing better now. I have copied and pasted the report from CT urogram for those interested and who can understand it. In summary, I have a very large tumor in top part of my urethra where it connects to kidney, and looks highly suggestive of urethial carcinoma; maybe advanced. Still trying to figure out how it was missed on original CT and renal ultrasound but am concluding probably because of location.

You know me....I have researched a lot about this including high-grade tumor. Even if the odds of surviving 5 years is estimated at 10-30% I truly believe I will be in that percentage, and am willing to do whatever it takes. Hoping it's low-grade but will deal with it whatever it turns out to be. On a positive note so far it is not showing up anywhere else and even the lymph nodes for now look not to be affected.

Even if by some miracle it is not cancer, they still have to take out my kidney and urethra because of size and location, but no big deal....a lot of people are living with only 1 kidney.

Going for biopsy surgery Monday on outpatient basis, but will be under anesthesia. My daughter Krista and her boyfriend Wayne are coming down on Sunday and will be going with us. Check-in in 3:30 for now and surgery 5:30, and may be able to be discharged around 8:30 or so if all goes well. The next step will be meeting with Urology Oncologist May 21 for results before they schedule major surgery. If it is aggressive, they will want to do chemo prior to surgery....do not know for how long. I will also have a stent in my urethra until who knows when and doctor will remove in his office (no knock-out juice sadly for that one!) ANYONE WHO HAS HAD/HAS STENT PLEASE TELL ME WHAT IT'S LIKE. My only worry is will it handle large clots as have had a lot of them.

Nothing discussed bothered me up to that point until the scheduler told me I had to have a COVID swab test Friday before surgery (that's tomorrow) You would have laughed and exclaimed 'WHO IS THAT?????. Holy cow, I had an enormous autistic melt-down right in front and at the lovely and sweet scheduler!!!!! I was yelling, waving my hands and arms were flying and using the "F"-word!!!! It was like an "out of body" experience! I HAVE NEVER had a melt-down in front of ANYONE.....I would hold it in until I was alone. I apologized to her and cried and everything! She was fine with it and said, 'hey we are women...you should see me sometimes"! I just think that was the straw that broke the camel's back, but I am o.k. today. Watched some "videos" about it and talked to a girl today at our favorite vegetable and fruit stand (Joe's) who has had it twice, and feel better about it. Dave's daughter-in-law Emily was there (standing in for Dave as only 1 person was allowed to be in there with me and he thought Emily would be better at keeping track of everything said and taking notes. She told me she thought my melt-down was funny! Any, I got through that part o.k. but they had a problem drawing blood...that does not bother me at all. Brief of what they found copied directly from CT urogram report:

IMPRESSION:

Ill-defined expansile mass in the right renal pelvis and proximal ureter
producing moderate right pelvocaliectasis and moderate to severe ureterectasis
of the proximal ureter with abrupt tapering. Findings are highly suspicious for
urothelial carcinoma.