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Ear Tinnitus and Pain with Neuropathy
Neuropathy | Last Active: Mar 21, 2023 | Replies (168)Comment receiving replies
My sympathy to your wife for her pain and tinnitus. I have suffered from debilitating noise induced tinnitus for over 30 years so I know what she is going through, in part. The only medication that has helped me somewhat is amitriptyline with lyrica. In terms of NSAIs aspirin is the worst, Tylenol is better. It is a problem not being able to use painkillers at all. Worse it is very awful being afraid to try any new medications. Especially when they are for necessary ailments. For example, I have asthma and must use a pump to clear the airways. Must also take medications for high blood pressure. Most tinnitus sufferers feel that way. Your wife is not alone in this. Her jaw condition makes things more problematic for her.
I have some masking sounds that I use every night called Petroff technologies. I use ear buds and turn on one of the sounds e.g. water or nature and I play them as softly as possible to be effective maskers all night. Without them it would be difficult to get a good nights sleep. I also tend to avoid activities where I am required to bend over as this worsens my tinnitus. Exercise is necessary and I find biking or walking are best. I have difficulty going to noisy environments because I also have hyperaccusis an over sensitivity to sounds. I wear hearing protection to prevent the pain of loud sounds such as at a restaurant or party, forget about concerts! I hope that you wife can find some solutions for her problems but one thing she can be sure of is that she is not alone.
Willows
Replies to "My sympathy to your wife for her pain and tinnitus. I have suffered from debilitating noise..."
Willow,
Thank you for writing and sharing your story. My wife sounds similar to you in that she too enjoys stationary biking and walking as well. I am hoping to introduce her to you all here one day when she is ready. You are absolutely am amazing and I can’t thank you enough for replying, writing and sharing your story with me.
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Good morning @willows, thank you for posting your tinnitus struggles and history of the things you have tried. Is yours in just one ear or both? Has it ever moved from one ear to another? Have you ever heard what felt like a hairbrush in your ear canal? Or when you move your jaw back and forth it changes the noise accordingly?
I checked out your Petroff audio products. I often use the Tulip drum music for relaxation. Years ago I traveled on business for 10 years. The ENR clinician taught me how to use biofeedback tapes to avoid what was probably tinnitus. I was hit by another car on the freeway and suffered head injuries. I also packed a shoulder stretcher that I hung over the closet door in my hotel room. And that was before opioids and medical cannabis. So...I just had a sip of Jack Daniels.
Here's a laugh.......we usually had several copies of the NY Times newspaper and I would start a contest to see who could finish the crossword puzzle first or get certain hard words. This was before cell phones or the internet and because I flew so much, I usually was seated in first class with all the other "suits" as we called them. I was often the only woman upfront and I loved challenging them on the crossword puzzles. Amazing how a three-hour gate hold could be a vocabulary lesson.
What is the sound protection that you wear? You had tinnitus for 30 years and you found ways not to let it drive you crazy. Congratulations. It doesn't sound like you were enticed to spend money on untested treatments.
How does exercise....walking, and biking....help with tinnitus? I walk a lot. Should I be doing something while I walk? iPods?
@tjadam Are you seeing something that can help your wife?
May you all be safe and protected from inner and outer harm.
Chris