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TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)

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@janstar61

I have tried everything. Naltrexone, Tramadol, Cymbalta, Lyrica, physical therapy, massage, thousands and thousands of dollars on medical mj, naturopathic medicine, thousands of dollars on chinese herbs, thousands of dollars on acupuncture, physical therapy... you name it I have tried it. The only thing that has relieved the pain and sensations -burning crushing pain, is a combination of Lyrica and opioids. I have remained stable on my meds for several years. They have brought my pain levels down from a 9 to a 3. I am at a point I am will to try almost anything now to try to reduce the meds I am on. I am tired of doctors looking at me like I am a drug addict because I am on an opioid patch. I have been looking into IVIG as a possible option.

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Replies to "I have tried everything. Naltrexone, Tramadol, Cymbalta, Lyrica, physical therapy, massage, thousands and thousands of dollars..."

Hello Jan Star,
I am high TS-HDS but I was curious about your description of the pain, burning crushing feeling. Is this at the skin level or deeper if I may ask? only Asking because I am trying to understand in my case if TS-HDS could bring on my muscle pain (dr. doesn't think so, but hasnt given me a diagnosis other than this finding )