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Ear Tinnitus and Pain with Neuropathy
Neuropathy | Last Active: Mar 21, 2023 | Replies (168)Comment receiving replies
Good afternoon @tjadam, welcome to Connect. And greetings to your wife. She is lucky to have you watching out for her. That is something I also have.....a wonderful life partner who patiently flows up and down with my life filled with ISFN. It seems like everything we do depends on what kind of day I am having with my pain and that noisy and unwelcome tinnitus.
How is her your wife's jaw tremor adding such horrible pain to tinnitus? Is there pain in her peripheral elements....arms, legs, feet, hands, and fingers? If she is taking gabapentin is it all at one time of day or spread out morning, noon, and night? What is the tinnitus about and what medications have you tried? I found that I can keep the tinnitus in a memory book and not actively in my head. Mindfulness helps me keep the tinnitus at bay.
I have exactly the same medical issues as your wife, ISFN, tinnitus, and neuropathy pain, numbness, and tingling in legs, arms, and even my skull. I have tapered down to 600 mg of bedtime gabapentin after replacing another 600 mg with medical cannabis. Ambien was tried pre-surgery one time and was way too frightening for me. I now use a 2:1 CBD/THC tincture which is just perfect to permit sleep with no side effects.
My PCP and I do an annual evaluation of the efficacy of all treatments and medications. This year we will do that next week. We use a shared decision-making strategy to modify what I call "The Plan". New to the Plan will be possible solutions for what I call neuropathic itch. If your wife does not have it......then celebrate.
My life is enriched by and responsive to daily Yoga, mindfulness, and meditation. Mindfulness, in and of itself, is my first stop when I feel a bit out of control with pain or raucous tinnitus.
Remember please, that as of today, there is no cure for neuropathy. There are reports of research going on in three companies right now with the hope of improving the speed with which nerves can be regenerated. We can share hope.
May you and your wife have happiness and the causes of happiness.
Chris
Replies to "Good afternoon @tjadam, welcome to Connect. And greetings to your wife. She is lucky to have..."
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Chris,
Thank you for sharing. My wife’s jaw tremor does not make the tinnitus worse, but the tremor makes her jaw hurt constantly(from the constant movement.). She wears a bite guard at night for she worries the tremor makes her teeth chatter and is causing teeth and gum damage.
I think she would really like you. She also does a lot of mindfulness and does enjoy yoga.
She did try the CBD once and it also made the tinnitus horribly worse for her.
I wrote to Amanda moments ago that I was hoping to see if anyone else out here has similar symptoms as my wife for she feels very alone in this and that no one understands what she is going through. My hope is that I can introduce her to you all one day. Thank you for your response and I wish you the best as well.
T.J.