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Almost pure blood and blood clots in urine

Kidney & Bladder | Last Active: May 15 9:54am | Replies (61)

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@so1frustrated

Ginger thank you for responding as a fellow Aspie, and to all others (hope you can see this), here is LATEST UPDATE FROM CT UROGRAM yesterday:. The radiologist who reviewed called my Urologist immediately. Copied from the on-line report posted early this morning: IMPRESSION:
Ill-defined expansile mass in the right renal pelvis and proximal ureter
producing moderate right pelvocaliectasis and moderate to severe ureterectasis
of the proximal ureter with abrupt tapering. Findings are highly suspicious for
urothelial carcinoma.
Got a call from my urologist last night who said he is referring me to another urologist in their group who can see me sooner for surgical evaluation as wants to move fast. The "new" urologist's office just called me and will be seeing for pre-op meeting tomorrow and the surgery is scheduled for Monday. OH CRAP, here we go. Needless to say I am scared and nervous but knowing my God is my God and in charge, no matter the outcome, and can see His hand in intervention and direction. Hoping all of you who have been involved in my posts can see this. Thank you

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Replies to "Ginger thank you for responding as a fellow Aspie, and to all others (hope you can..."

@so1frustrated I hope you are feeling a bit of relief, knowing things have ramped up and you are getting help. Many will tell you we are handed only what we can handle. Take time to have a cup of tea. Write out questions [like, "why did this take so long to do more diagnostic testing?"], concerns, etc. Do you have friends or family nearby, to turn to for support? Knowing you will be hearing a lot of new terms and thoughts, will they allow you a second person with you to also hear and take notes, or perhaps record the appointment?

Remember we are here for you, and will support you however we may be able to.
Ginger