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Ho Toni - It's Fatigue - with a capital F!
I think it's the very bronchiectasis itself, and the fact that our lungs must work harder than a normal lung just to provide air.
For 3 days we prepared & closed our tiny house to come home, but have learned to pace ourselves - we used to try to do it in a day. Then 2 14 hour days on the road (over 12 hours each day of driving time.) Today I turned off the alarm and slept in but I still feel limp. In about 10 minutes, I will follow my own advice and take a 30 minute nap, so I have enough energy to unpack a bag or two - only the coolers and immediate needs have even been removed from the car - but I did check Connect, answer the emails from 5 days, and balance my checkbook.
I have learned that when I feel like this, taking a pause is the most effective thing - so I'll skip my walk and let the laundry sit until tomorrow.
Have you tried either a "power nap" (20-30 minutes) or a longer one on these days? Does it help?
Sue
Replies to "Ho Toni - It's Fatigue - with a capital F! I think it's the very bronchiectasis..."
Hi, Sue. I'm sorry I'm just seeing this. I haven't been on my e-mail site for a while. This is so astounding to me, all of this. What is most disturbing is my doctors have mentioned nothing of these types of effects from this disease. I find that pitiful at best. I'm walking around thinking I'm a lazy bum ( LOL) and in actuality it's this lung issue. I've always had my 2pm crash time, but just push through. Now, as I mentioned, it could be 30 minutes after I wake up and I'm completely exhausted ! I've never been able to do "Power naps" in the past. They always made me feel groggy. Now, there are days I just have to sit and fall asleep. Thank you so much for sharing your experience with fatigue. I had no idea!! It can be truly overwhelming ! thank you, Toni
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Well, this is interesting. I figured it was just my "clock" and it was overworking. I have always crashed at 2:00pm. But, I've always plugged along and the tiredness passes. But now? I get exhausted about 11:00am and just whenever. I never thought about the Bronch. . I figured it was the MAC. ???? I've never been able to power nap. I always felt more tired after I slept. So I don't. ... Thank you for your insight, Sue !!! I need all the help I can get !!