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I was diagnosed with Tumid Lupus in April. Initially my first flare (March) was thought to be some type of contact dermatitis because it was on my legs. When the second flare up hit, I pushed for more answers. My dermatologist did a biopsy and was shocked when my results indicated this diagnosis. I had a flare up on my neck and was prescribed prednisone. The amount I was told to take was way more than I could handle and had to stop. Now I have another flare up, same as my first and second on my legs, and back to using a topical steroid. They seem to be happening every 30 or so days. Does anyone else seem to have cyclical flare ups of their rashes?
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I haven’t talked to the dermatologist yet. I did mention after my second flare up and she didn’t think it was related to anything. Maybe this time will be different?
Thanks for the reply to my post. It’s nice to know there is support out there.
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Hello @mtblack, Welcome to Mayo Clinic Connect. I know it's difficult trying to find out what is causing the flare ups with Tumid Lupus. @mnkennedy, @pdesar65, @efreeman, @billjan, @mantramagic @lanakaymedina and @paulamiddleton may have some thoughts or suggestions to share with you. While we wait to hear from other members you might find the following information on the Lupus.Org site helpful.
Common triggers for lupus: https://www.lupus.org/resources/common-triggers-for-lupus
Did your dermatologist have any thoughts on the flare ups happening every 30 or so days?